"5 whole days under our belt!" That is how we re trying to cope with this phase. With each day that we get through, we are that much closer to being done with this phase. It sounds way better than realizing that we still have 51 more days of intense therapy.
Nicholas has been doing well and went back yesterday for another treatment. His doctor would like to have seen him tomorrow or tuesday, but due to the inaugaration, the roads to the hospital are closed. We will go on Wednesday (even then the roads may still be closed - according to the road signs I saw on my way there this week), but the show must go on. The treatment he got yesterday decreases ones ability to clot, so we have to keep a good eye on him and make sure doesn't hurt himself. We are hoping he doesn't get hurt or get sick as we don't know how we'd get in for treatment. He is a bit cranky, because he is back on the steroids. This make it hard on everyone, but we are happy to see him otherwise pretty active.
Thanks to everyone who has been making dinners. We are eating like kings and it makes a huge difference in my day.
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