Thursday, September 25, 2008

Thursday September 25, 2008 - Day 7

Well we are about to complete our first week here (the first two days don't count since Nicholas was not receiving chemo at the time). Three more weeks are going to get long here, but they still keep us busy and we had a glimmer of hope today that maybe we won't have to stay the entire 28 days.
Medically speaking today was uneventful. His white blood cell count is now well into the normal range, but the hemoglobin still needs some work. He didn't need any platelets or blood transfusions today, so that was nice. Tomorrow around 11 or 12, he will be put under for another bone marrow byopsy and chemo administered to the spine. This will be the plan for every friday. I don't like seeing him put under - especially when they have to re-cover the risks involved. But what can you do? It has to be done, so you just pray that those things won't happen.
On a personal note, here is what we did today: Nicholas had a fun day going outside to what we are calling our "special spot". It was a bit chili, so we didn't stay out long. But we when we came in, Stacey was here bearing gifts for Nicholas and Chilpoltle for me. Best of all, Stacey brought Funyuns! Nicholas is obsessing over them - even turning down chocolate for funyuns! This is a result of the steriod chemo he is receiving twice a day. It makes them crave the salt. Otherwise, Nicholas really isn't eating - even turning his nose up at his favorite ice cream and sprinkles. We both enjoyed her visit and it was so sad when she had to leave. Nicholas kept telling her to "stay, stay". When the elevator doors closed, we both could have cried. But while she was here they played ball and had a little picnic together.


We no sooner got back to our room When Marci, Marshall, Jordan and Victoria came to visit.
They came with cupcakes and Nicholas enjoyed watching Jordan stuff a whole one into his mouth (they were mini by the way). He wants to try it. But he had the most fun with Marshall as you can see in the video below.


All in all it was a fun day with a large dose of home. Just what we needed to begin our second week.
Thanks to everyone for the daily emails, thoughts and prayers. You are truly a gift to us and it means the world to us.

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