Tuesday September 23, 2008

No big change today - blood pressure is still a bit high, but may be because he is fighting having it done and is stressed when he sees anyone come in the door. His blood sugar came back high today, so they had to poke him in his foot at 6AM to make sure he wasn't going into a diabetic shock. Fortunately, his blood was fine and the high results were due to using the line where he gets his sugar saline fluid. They did and ultrasound on his foot today as it was irrited by something before we even came here. It just wasn't getting any better. They did not find anything in it, so now they are looking into what that could be. They say this is totaly unrelated to the Leukemia, but want to get it fixed while he is under anesthesia on Friday during his second bone marrow byopsy.

The next big day we have is the following friday where we will get additional results from the first bone marrow byopsy and tests will be run to determine whether or not he has met certain markers showing a true response to treatment.

The lack of sleep is starting to catch up with us, but I think I say that gratefully. Nicholas is still full of energy and wanting to go go go all day. Any naps he tries to take are interuppted and our days run from about 6AM - 11PM - non-stop. He is enjoying entertaining the staff and has gotten so much new stuff that he may confuse this with Christmas - minus all the other stuff he has to tolerate. We are basically staying her to keep him away from infection. I look forward to just coming, getting the meds, and getting back home. It will be three times per week, but mentally we'll be in a better place than staying with a tethered monkey in a 10 x 10 space.