This morning Nicholas woke up starving! He hasn't hardly eaten a bite in a week, but now that he couldn't have any food because of the byopsy and spinal tap, he wants to eat everything he can find. Needless to say, it has been a rough morning trying to keep his mind off of food until 1:00!
Putting your child to sleep when you are already so emotional is very tough. I cry every time. But I do what I have to so and then slip out to starbucks so I don't dweel on it. He did well and hopefully we will have some results by 7 or so. They still expect it to show signs of Leukemia since it has only been a week, but things should be better than last week if he is responding well. Preliminary blood work already shows it is, but the truth is in the bone marrow.
He came out of his procedure asking for Funyuns, but fell back to sleep in his crib before he could eat any. They came in to do vitals since they gave him more platelets before his surgery, so he was up quickly and feasted on funyuns, tacos, chips and nacho cheese. He is very happy snacking on whatever he asks for. Life is good right now.
Those of you wondering what kind of diet he is on - well the nutritionist said that although it would be great if he ate a balanced meal, they really just want to keep the calories coming in. He can't have fresh fruits and fresh vegetables, because of the pesticides and his immune system is compromised. She will start him on some pediasure by Monday. She says kids can live on that if need be.
Rich is taking over now and I get a little break. Hope to see some of you this weekend.
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1 comment:
I was stunned and saddened to hear about Nicholas, and I'm so sorry you have to got through this. I think it is a good sign that he was diagnosed so early and action taken so quickly. What a great Mama and Nicholas warrior you are Donna. Love the blog and the videos-fantastic way to know how things are going. Good thoughts, love, hugs and kisses-sorry Nickolas no Funyuns- from San Diego.
Judi Schaefer
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