Thursday October 16, 2008 - Day 28

In case you didn't get word yet, we were discharged from the hospital last friday afternoon. We love love love being home and everyone is sleeping better in their own bed. We haven't found a free minute as now we are responsible for everything - all the medications, numerous mouth washings, drinking enough? peeing enough? fever? Any pain? Not too mention the feeding all day long - he is still on the steriods. He finished those tonight and we will now wean him off of those - can't wait to be totally done with these.

We have been going back to the hospital every other day for labs and exam. Nicholas seems to be faring well and we haven't had to have anything "extra" like a blood transfusion, or platelets, etc, so it only takes up about 5 hours of my day!

We got his haircut on Wednesday. Not quite the cancer patient cut, but much shorter than we are used to with him.

Tomorrow we go to the hospital early for a 10:00 bone marrow biopsy and spinal treatment. We need to go a few hours early so they can make sure his blood work is good. This ends our "induction" period and the results of the biopsy will determine the exact course of treatment for the next period known as "Consolidation". In this period they will focus on the brain and testicles as that is where leukemia cells tend to hide themselves. We will discuss what this means with the doctor in more detail tomorrow.