Shortly after I posted my big exciting news that Nicholas was off of his IV, he was back on it again. So disappointing. For some reason he is not holding on to enough sodium. Need I remind you that he is living off of funyuns, peanuts, popcorn, bacon, etc? I mean, we are doing are part here! He is allowed off of the IV for short periods of time though, so we try to get out a bit. He even walked with me to Starbucks this morning. It was a nice little outing.
The doctor is going to have a renal specialist take a look at him to make sure that they aren't missing anything. He will start taking his steriods orally tonight and they were making a call to CVS so we can contiue them as an outpatient. They only need to be taken for one more week, so we won't need much. The nurse also just came back in to say they were going to take him off of the IV again (everyone said this would be a roller coaster!) All of this in preparation to go home, so that is a good sign.
He is doing well here and we can'[t speak highly enough of the care we have received here at Georgetown. Nicholas is content to stay here where he has attention 24/7, gets to eat anything he wants (except fresh fruits and veggies that is) in a lazy boy while having full control of the TV. What's not to love? Me on the other hand, I am ready to get out of my cell. They have taught me how to care for him at home and I am ready to put it into action.
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